SMA Europe's 1st International Clinical Care Symposium on SMA will focus on disease symptoms that may lead to ...

Figuring out how to ask for help in public takes practice, says columnist Connie Chandler, but it's well worth the effort.

A high-carbohydrate diet may help people with SMA, as they have metabolic alterations that lead to increased fat burning, per ...

Following the launch of MDAS' Cybernics Treatment program, columnist Sherry Toh shares her hopes and concerns for the future ...

Columnist Halsey Blocher honors Val Kilmer, the late movie legend who offered a positive representation of living with a tracheostomy tube.

Researchers expected counselors working with some populations to report barriers with SMA screening, but all counselors faced ...

Liver damage related to Zolgensma gene therapy usually resolves within a few months of treatment, a study found.

Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry ...

In her debut column of "Caring Together," Connie Chandler reflects on her college days, when friends volunteered to help with ...

For a boy with SMA in China, starting Evrysdi (risdiplam) just 12 days after birth was safe and helped him reach key motor ...